Rapid Fire
International Thalassemia Day
- 08 May 2025
- 2 min read
International Thalassemia Day is observed every year on 8th May as a global effort for prevention, awareness and early diagnosis for inherited blood disorder disease Thalassemia.
- The theme for 2025 is "Together for Thalassemia: Uniting Communities, Prioritizing Patients".
- About Thalassemia:
- Burden: India, termed the "Thalassemia capital," has 50 million beta thalassemia carriers and contributes to 25% of global cases.
- Treatment: It includes regular blood transfusions to maintain healthy red cell levels, managed with iron chelation therapy to prevent iron overload.
- In severe cases, bone marrow or stem cell transplant offers a potential cure.
- Initiatives for Eradication:
- Under the National Health Mission (NHM), States/UTs receive support for thalassemia screening, treatment, and related infrastructure.
- The government recommends integrating thalassemia testing into the Reproductive and Child Health (RCH) program for early carrier detection and genetic counseling to reduce the disease burden.
- National Program for Prevention and Control of Hemoglobinopathies (NPPCH) to raise awareness, offer counseling and testing services for affected individuals.
- Thalassemia Bal Sewa Yojana (TBSY) provides financial aid for Bone Marrow Transplants through Coal India Ltd.’s CSR in 17 empanelled hospitals nationwide.
- Under the National Health Mission (NHM), States/UTs receive support for thalassemia screening, treatment, and related infrastructure.
Read More: International Thalassemia Day |